Child “petrified” because of rare illness

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Jaden, Rogerstone: GoFundMe

Due to a rare skin disease 12-year-old boy from the us state of Colorado became hard as a rock. It is reported Yahoo7 News.

Congenital fascial dystrophy, which affects 12-year-old Jayden Rogers (Jaiden Rogers), opened in the late 1970-ies. Since then, the disease struck only 41 people. It quickly spread throughout the body, making the skin thicker and firmer. As a result, the patient loses the ability to move and may die.

Five years ago, the adoptive father noticed a small lump on the right thigh of the boy. Within weeks, the tumor covered the entire thigh and reached the inner bend of the knee. Then it spread to the left foot, buttocks and arms. Due to the accumulation of calcium salts in the joints of the child began to lose mobility.

Doctors trying to slow the spread of the disease by chemotherapy. In addition, the teenager has to take strong painkillers, which he sleeps for up to 18 hours a day. He is forced to use a wheelchair and can no longer attend school.

Foster parents spent on the treatment of the child 500 thousand dollars — all that time to save up for old age. Now they are trying to collect $ 1.5 million on the crowdfunding service Gofundme to send Jayden to a European clinic for a one-year course of therapy using stem cells.

In 2017, it was reported that after a trip to Indonesia in 37-year-old defender of animals from the UK was diagnosed with diffuse systemic scleroderma that makes the skin and connective tissue firmer. Experts believe that the development of the disease provoked the bite of a mosquito.

Video, photo All from Russia.



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