Photo: Karla Deyes
The British resident of Essex County told how living with a rare disease in which a person “breaks”. Her story shared the edition of The Mirror.
26-year-old Carl Deyes (Karla Deyes) began to suffer from convulsions in five years. Two years later she was diagnosed with the syndrome of parry-Romberg disease, in which atrophy of muscle and bone half face. In some cases, the atrophy may also affect the limbs, usually on the same side of the body, where there was atrophy of the face.
The left leg of the girl grew not as fast as the right, causing her great pain to walk. She had to undergo chemotherapy, the body has ceased to deform, and migrate several operations. One of them was unsuccessful — Daies lost all his facial nerves and remained with scars on the face.
The British had suffered greatly because of the appearance, according to her, part of her face, “slipped and flowed”. The girl avoided his peers, hiding half of her face and tried to spend more time at home. Daes repeatedly told his parents that he wants to die, but they tried to support her.
Now she had an operation to correct the shape of the chin, and transplanted to the face fat from other parts of the body. Dayes admitted that the first time he felt confident. Not so long ago, she found a boyfriend. She shared her story to inspire everyone suffering from the disease.
“I had no one to talk to when I was growing up because I didn’t know that there are more people with this disease. I thought I was the only one in the world, and it was the worst,” admitted the girl.
Video, photo All from Russia.